COVID-19 UPDATE (12/15/2020)

In light of the uncertain months ahead due to the COVID-19 pandemic, the 3rd Glut1D European Conference will transition to a digital event in June 11-12, 2021.
Our primary objective for cancelling the in-person event is the health and safety of our attendees, faculty, industry partners and their families.
Detailed information will be available soon.



Dear Families, Dear Colleagues,


It is our great pleasure to organize the 3rd European GLUT1-DS meeting in Lille France, June 11th and 12th, 2021. It is a great honor for us to have the European meeting in France after the great job of the Italian GLUT1 association in 2016 and Matthews Friends in 2018.


This biannual meeting will once again provide an update on diagnosis and management of GLUT1 deficiency. Eminent European key opinion leaders have agreed to speak and to provide their expertise in the field. As in the previous editions, a large amount of time will be devoted to discussion and to answer questions. Everything will be done to promote interaction between the experts, the healthcare professionals and the families.


We are confident that you will enjoy the lectures and the meeting. 


On behalf of the Local Scientific Committee,


Stéphane Auvin




Bonjour à tous

Chaque année nous nous réjouissons du rassemblement autour du déficit en Glut1, quel que soit le continent sur lequel se passe ce rassemblement, nous attendons avec impatience ce rendez-vous. Cette année nous avons la chance que ce rassemblement se passe sur le territoire français.

C’est le moment idéal pour chacun d'entre vous de venir rencontrer les différents professionnels internationaux qui, tout au long de l'année et depuis plusieurs années, travaillent dans le but de trouver des solutions pour nos enfants.

En juin 2021, ce rassemblement aura lieu à Lille. Réservez dès aujourd’hui votre weekend du 11 et 12 juin 2021.

Si la maladie de votre enfant vous questionne encore, si vous avez besoin d'en savoir plus, de mieux la comprendre alors ce weekend est fait pour vous.
C'est aussi le moment idéal pour rencontrer les familles avec qui vous échangez via le groupe de parents sur internet

C'est aussi un moment pour nos enfants, un temps où ils vont pouvoir rencontrer des enfants qui comme eux vivent avec le déficit en Glut1 et le régime cétogène.

Nous espérons vous voir nombreux.


Magali Sorret, la présidente et toute l'équipe d'ASDGLUT1




Dear friends,

It seems to have been a long time but it was only in 2016 when I met most of you in Milan for the 1st European Conference on Glut1 DS.
The idea at that time was to reproduce the G1D Foundation model and to have a conference on Glut1 DS also in Europe, every two years, rotating in all countries, in order to have a Conference every year in the the world.

Now we can say that things went well because in 2018 we met again in London for the 2nd conference, thanks to the organisation of Matthew's Friends and now ...


I have the great pleasure and honor to invite you all to the 3rd European GLUT1 Deficiency Syndrome Conference that will be held in Lille (France) next June the 5/6 th 2020. The main goal of this conference is to meet again each other and provide an update on Glut1 Deficiecy Syndrome. It will also be an opportunity to share ideas and to propose new projects for our future.

The participation of each of you is not only appreciated but first of all it is useful and important because I believe that sharing ideas and stay together is our most important resource to growth and the first step to achieve great results.


Special thanks to prof. Stéphane Auvin for organizing this 3rd Conference and to all of those who are collaborating for the best success of this important event.


Massimiliano Barone

President of the European Glut1 Deficiency Organisation












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